VI European Aniridia Conference 2022 and Patients meeting

Friday, 3 June 2022 12:00 PM - Sunday, 5 June 2022 2:30 PM CEST

Calle Dr. Perez Mateos, 2, San Juan de Alicante, VC, 03550, Spain

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Registration

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Conference | Active professional Partial Approval - €50.00

This ticket includes access to the Conference (Saturday and Sunday), coffee breaks and meals (Saturday and Sunday), welcome kit. It does not include travel and accommodation.

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Conference | Active professional from under represented countries Partial Approval - €35.00

These countries are: Armenia, Bulgaria, Croatia, Czech Republic, Estonia, Georgia, Hungary, Latvia, Lithuania, Malta, Poland, Romania, Serbia, Slovakia, Slovenia and Turkey. This ticket includes access to the Conference (Saturday and Sunday), coffee breaks and meals (Saturday and Sunday), welcome kit. It does not include travel and accommodation.

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Conference | Collaborator member Partial Approval - €35.00

This ticket includes access to the Conference (Saturday and Sunday), coffee breaks and meals (Saturday and Sunday), welcome kit. It does not include travel and accommodation.

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Conference | Student or Early Career Researcher Partial Approval - €25.00

Health and Science students | Early Career Researcher: researchers that they have been awarded his/her first doctoral degree at least 2 and up to 7 years prior the conference. Please make sure you can verify this status when arriving the event. This ticket includes access to the Conference (Saturday and Sunday), coffee breaks and meals (Saturday and Sunday), welcome kit. It does not include travel and accommodation.

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Conference | Speaker Partial Approval - Free

Please choose this ticket only if you have been confirmed by the Organisation as speaker or chair during the event or your communication has been chosen by the Scientific Committee to be presented.

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Attendee without Aniridia (not professional) Partial Approval - €150.00

This ticket includes 2 nights accommodation with breakfast (3&4 June). Access to Conference except the Working Groups (only for professionals) and/or access to activities for patients, coffe breaks, meals (3&4 June), patients’ dinner (June 4) / Esta entrada incluye 2 noches de alojamiento con desayuno (3 y 4 de junio). Acceso a la Conferencia excepto a las Mesas de trabajo (sólo para profesionales) y/o acceso a actividades para pacientes, coffe breaks, comidas (3 y 4 junio), cena de pacientes (4 de junio).

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Aniridia patient (not Spanish Aniridia Association member) / persona con aniridia no socia de la Asociación Española de Aniridia Partial Approval - €80.00

Ticket for Aniridia patients. This ticket includes 2 nights accommodation with breakfast (3&4 June). Access to Conference except the Working Groups (only for professionals) and/or access to activities for patients, coffe breaks, meals (3&4 June), patients’ dinner (June 4) / Ticket para personas con aniridia.Esta entrada incluye 2 noches de alojamiento con desayuno (3 y 4 de junio). Acceso a la Conferencia excepto a las Mesas de trabajo (sólo para profesionales) y/o acceso a actividades para pacientes, coffe breaks, comidas (3 y 4 junio), cena de pacientes (4 de junio).

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Aniridia patient's plus one (companion) (not Spanish Aniridia Association member) / Acompañante de paciente con aniridia no socio Partial Approval - €135.00

This ticket is only for aniridia patients companions. Maximum 1 companion ticket per person with aniridia, the rest of the companions must acquire the ticket for "assistants without aniridia". This ticket includes 2 nights accomodation with breakfast. Access to Conference (except working groups saturday morning, only for professionals) and/or leisure activities for patients / Máximo 1 ticket de acompañante por persona con aniridia, el resto de acompañantes deberán adquirir el ticket para “asistentes sin aniridia”. Esta entrada incluye 2 noches de alojamiento con desayuno. Acceso a Conferencia (excepto grupos de trabajo los sábados por la mañana, solo para profesionales) y/o actividades de ocio para pacientes

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Spanish Aniridia Association members / Socios de la Asociación Española de Aniridia Partial Approval - Free

Free ticket to AEA members: facto and collaborators. This ticket includes 2 nights accommodation with breakfast (3&4 June). Access to Conference except the Working Groups (only for professionals) and/or access to activities for patients, coffe breaks, meals (3&4 June), patients’ dinner (June 4) / Entrada gratis al Encuentro para socios de facto y colaboradores de la AEA. Esta entrada incluye 2 noches de alojamiento con desayuno (3 y 4 de junio). Acceso a la Conferencia excepto a las Mesas de trabajo (sólo para profesionales) y/o acceso a actividades para pacientes, coffe breaks, comidas (3 y 4 junio), cena de pacientes (4 de junio).

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Spanish Aniridia Association members plus 1 / Acompañante de socio de facto de la Asociación Española de Aniridia Partial Approval - €100.00

Only one companion ticket can be purchased for each de facto member. The rest must purchase "assistant without aniridia" or "assistant under 4 years old". This ticket includes 2 nights accommodation with breakfast (3&4 June). Access to Conference except the Working Groups (only for professionals) and/or access to activities for patients, coffe breaks, meals (3&4 June), patients’ dinner (June 4) / Sólo puede adquirirse una entrada de acompañante por cada socio de facto. El resto deben adquirir "asistente sin aniridia" o bien " asistente menor de 4 años". Esta entrada incluye 2 noches de alojamiento con desayuno (3 y 4 de junio). Acceso a la Conferencia excepto a las Mesas de trabajo (sólo para profesionales) y/o acceso a actividades para pacientes, coffe breaks, comidas (3 y 4 junio), cena de pacientes (4 de junio).

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Attendee under 4 years old Partial Approval - Free

The assistant has to be under 4 years at the time of the event. This ticket includes 2 nights accomodation with breakfast (3,4 june). The leisure activities will be for people over 4 years old. There will not be activities for children under 4 // El menor debe tener menos de 4 años en el momento del evento. Las actividades de ocio serán para mayores de 4 años, no habrá actividades para menores de 4. Esta entrada incluye 2 noches de alojamiento con desayuno (3,4 junio).

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Donation

Sale ends on 04/06/2022

Ticket sales only cover part of the cost of running this event. If you can help support us to pay for the the conference and other support for people with aniridia, please enter an amount to donate.

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1. Select Seats

2. Review and Proceed

Friday, 3 June 2022 12:00 PM - Sunday, 5 June 2022 2:30 PM CEST

San Juan Complex, Calle Dr. Perez Mateos, 2, San Juan de Alicante, VC, 03550, Spain.

Next Conference will take place 3, 4 & 5 June 2022 on San Juan de Alicante, Spain.

The European Aniridia Conference (EAC) enables the sharing of specialist scientific knowledge about the rare genetic eye condition aniridia. Its goal is to find cures for sight loss and other impairments due to aniridia.

Understanding aniridia is challenging, due to the scattered patient population, its highly variable impact and complications of linked conditions.

 

Patients meeting will take place simultaneously with the European Aniridia Conference and will be open to patients from all countries.

COVID passport/negative PCR test may be requested.

The Spanish Association of Aniridia has made the decision (thinking about the comfort of the majority and the efficiency of the work) to establish standard prices and quantities for each type of attendee at the conference. The association will manage the activities and bookings on behalf of the attendees in order to have and offer affordable prices.

Each modality specifies the services included in the price.

We try to offer the best services at the best price. The important thing is to be able to attend the conference and learn about the latest advances in Aniridia and the WAGR spectrum; (If you consider that your personal case is not included in the options offered, contact the organization).

We have tried to make prices reasonable in relation to the services offered. Each attendee only has to think about coming to Alicante on their own.

 

We will offer shared transfers for attendees throughout Friday June 3, times will be announced a little closer to the event, when we know the approximate number of registered attendees.

 

Please read carefully what includes each ticket:

Conference tickets include:

– Access to the Conference (Saturday and Sunday)

– Coffee Breaks and meals (Saturday and Sunday)

– Welcome kit

 

It does not include:

– Travel

– Accommodation

 

Aniridia patients and non professionals attendees tickets include:

- Attendance to morning and afternoon sessions at the Conference. (Saturday with no voice). Simultaneous interpretation English – Spanish both days.

- Ophthalmology consultation and possible genetic study (not confirmed) on Friday, June 3 from 12:00 pm to 18:00 pm.

- Leisure activities all weekend for patients and family members between 4 and 17 years. Transfer included.

- Leisure activities for both adults and children on Saturday morning. Transfer included.

- Accommodation with breakfast (2 nights, 3 & 4 june) in San Juan Complex.

- Meals and coffee breaks (Saturday and Sunday) and patients dinner on Saturday.

 

VIDEO TUTORIAL TO GET THE TICKETS

 

Example of purchase for a family of 4: 10-year-old son with aniridia, parents and 3-year-old sister. In this case, a ticket must be purchased for a patient with aniridia, a free ticket for children under 4 years of age, a first companion (plus 1) ticket and an assistant without aniridia ticket. 

Spanish Aniridia Association

www.aniridia.es

The Spanish Aniridia Association, created on June 15, 1996, is a non-profit association, registered in the Registry of Associations of the Ministry for Home Affairs and Declared of Public Utility.

Contact the Organizer View other events

Mariya Moosajee
PhD
Moorfields Eye Hospital

About Mariya Moosajee

PhD
Moorfields Eye Hospital
Heli Skottman
PhD
Tampere University

About Heli Skottman

PhD
Tampere University

About Juan Álvarez de Toledo

Dr.
Andrés Vásquez Quintero
Pr.
Ghent University - IMEC

About Andrés Vásquez Quintero

Pr.
Ghent University - IMEC

About Rafael Barraquer

PhD
Fabian Fries
PhD
Universität des Saarlandes

About Fabian Fries

PhD
Universität des Saarlandes
Paolo Rama
PhD
Universita Vita-Salute San Rafaelle

About Paolo Rama

PhD
Universita Vita-Salute San Rafaelle

About Pilar Casas de Llera

Dr.
Peter Netland
PhD
University of Virginia

About Peter Netland

PhD
University of Virginia
Barbara Käsmann-Kellner
PhD
Universität des Saarlandes

About Barbara Käsmann-Kellner

PhD
Universität des Saarlandes
Juliana Martínez-Atienza
PhD
Aniridia-net

About Juliana Martínez-Atienza

PhD
Aniridia-net
Elizabeth M. Simpson
PhD
University of British Columbia

https://cmmt.ubc.ca/simpson-lab/

About Elizabeth M. Simpson

PhD
University of British Columbia
James D. Lauderdale
PhD
University of Georgia

https://cellbio.uga.edu/directory/people/james-d-lauderdale

About James D. Lauderdale

PhD
University of Georgia
Sophie Valleix
PhD
Hôpital Necker-Enfants Malades

About Sophie Valleix

PhD
Hôpital Necker-Enfants Malades
Fiona Blanco-Kelly
PhD
Jimenez Díaz Foundation -IIS

About Fiona Blanco-Kelly

PhD
Jimenez Díaz Foundation -IIS
Alexandra Yu Filatova
PhD
Medical Genetic Research Center, Moscow

About Alexandra Yu Filatova

PhD
Medical Genetic Research Center, Moscow
Kelly Trout
IWSA President
International WAGR Syndrome Association

About Kelly Trout

IWSA President
International WAGR Syndrome Association

About Dominique Bremond-Gignac

Pr.
Jorge L. Alió y Sanz
Pr. Dr.
Miguel Hernández University

About Jorge L. Alió y Sanz

Pr. Dr.
Miguel Hernández University
José Carlos Pastor
Pr. Dr.
University Institute of Applied Ophthalmobiology

https://www.ioba.es/

About José Carlos Pastor

Pr. Dr.
University Institute of Applied Ophthalmobiology
Marta Corton
PhD
Jimenez Díaz Foundation

About Marta Corton

PhD
Jimenez Díaz Foundation

About Daniel Aberdam

PhD
Carmen Ayuso
Pr. Dr.
Jimenez Díaz Foundation

About Carmen Ayuso

Pr. Dr.
Jimenez Díaz Foundation
Neil Lagali
Pr.
Linköping University

About Neil Lagali

Pr.
Linköping University

About COST

www.cost.eu Sponsor Logo

About Aniridia Europe

www.aniridia.eu Sponsor Logo

About Aniridia Net COST Action

www.aniridia-net.eu Sponsor Logo

About ONCE

www.once.es Sponsor Logo

About Rotary Club Alicante Puerto

https://rotaryclubalicantepuerto.es/ Sponsor Logo

About Kreston Iberaudit

https://www.kreston.es/ Sponsor Logo

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Sessions on Jun 03, 2022

12:00 PM

Ophthalmologic study and genetic assessment

12:00 PM - 06:00 PMVissum Miranza, Alicante
  • +1
  • Pilar Casas de Llera

    Dr.

Sponsors

Sessions on Jun 04, 2022

08:30 AM

Plenary sessions. Saturday morning

08:30 AM - 10:30 AM
  • +2
  • Jorge L. Alió y Sanz

    Pr. Dr.

    Miguel Hernández University

Sponsors

  • +1
11:00 AM

Parallel working groups. Saturday morning

11:00 AM - 02:15 PM
  • +15
  • Juan Álvarez de Toledo

    Dr.

Sponsors

  • +4

Patients meeting | Leisure activities

11:00 AM - 02:15 PM

Sponsors

03:30 PM

Aniridia-net COST action: European cooperation in aniridia research.

03:30 PM - 07:00 PM
  • +5
  • Mariya Moosajee

    PhD

    Moorfields Eye Hospital

Sponsors

  • +1

Patients meeting | Leisure activities for kids

03:30 PM - 07:00 PM

Sponsors

05:35 PM

Presentation of selected posters and communications. Rapid fire session for Early Career Scientists.

05:35 PM - 07:00 PM
08:30 PM

Patients meeting | Patients dinner

08:30 PM - 09:30 PM

Sessions on Jun 05, 2022

09:00 AM

Sunday morning summary

09:00 AM - 11:45 AM
  • +3
  • Juan Álvarez de Toledo

    Dr.

Sponsors

  • +2
12:10 PM

Patients meeting | Round tables for patients

12:10 PM - 02:15 PM

Sponsors

  • +2